ARPKD| CHF Alliance
Research

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Clinical Research Specific to ARPKD/CHF

Clinical Investigations into Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis

Funded by "The National Human Genome Research Institute" at the NIH (National Institutes of Health), it focuses on kidney, liver, and other disease manifestations.  This is the largest clinical study to date and is particularly important for CHF, which can be life threatening. 

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The ARPKD Database
The University of Alabama at Birmingham RPKDCC is an interdisciplinary center of excellence in PKD-related research, with specific emphasis on recessive PKD.

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